Apple sauce is good, don’t get me wrong. Although if it’s almost all you can eat, day after day, even the tastiest apple sauce is going to lose its appeal. But when you have trigeminal neuralgia and/or other face pain conditions, eating is a tricky business. Biting and chewing – especially crunchy, hard or chewy…
Tag: medical
Understanding Symptoms – is this Trigeminal Neuralgia?
Trigeminal Neuralgia are two words that most people in the world have never heard. Two words that most people will never say. Even doctors. This creates a particular difficulty for people when they are diagnosed with the condition. What the eff even is trigeminal neuralgia? We might want doctors to have all the answers, but…
Noisy Creatures
One of my favourite places to write, other than my art room on a sunny morning, is a local cafe – sitting at the quiet table in the corner, between a small forest of monsterras next to the window. If we go at the right time, it’s the perfect place. Wonderful art on the walls,…
How to get the best from your neurology consultation
Getting correctly diagnosed with trigeminal neuralgia is, for many people, a long, painful and frustrating business. Little training is given about it in medical school – my GP told me that he had had perhaps ten minutes teaching on TN in a lecture on neurological conditions back in his first year of training. This isn’t…
All the Little Extras: Quirks of Trigeminal Neuralgia
When I’m busy on a writing project, particularly if it’s poetry or fiction, one of my favourite things to do is go to a local cafe and spend a couple of hours with a couple of cappucinos and my tablet. Most of my writing time is spent at home, in a quiet room overlooking the…
Rundown on a Rare Disease
Today was a lucky day. I found a four-leafed clover. Our garden was a farm paddock before they put a road and houses here, and if we don’t keep the lawn under control it swiftly reverts to type and the clover runs rampant. It’s the first time I found a four-leafed clover – despite hunting…
Walking Sticks & Freedom
This morning was one of those grey-white, mizzly days. Warm, and not quite raining, but the sun seemed to have decided to stay in bed, wrapped up in the snuggly folds of duvet-clouds. I, on the other hand, was fizzing with energy (rare, and not-to-be-wasted), even after a shower. So after breakfast, we decided to…
Watching the Birdies
Our avian wildlife put on quite a show for us on Friday morning. We keep a bag of birdseed by the front door, and every morning pour handfuls of it on the fence outside our dining-room window, so we can watch the birds foraging while we eat breakfast. We always see a swarm of squabbling…
Learning to Live With It
It’s the middle of winter here in New Zealand, and we’re already seeing signs of new life all around. It’s a gorgeous, sunny day today so I’ve just had a traipse through my garden. It’s heaving with welcome signs of spring, like the purple flowers starting to put out their spears on the hebe shrub,…
Sounds of Silence: TN and Tinnitus
Silence is golden – or so it’s said. I wouldn’t know. I always thought silence was a utopian exaggeration. An absence of ambient sounds with plenty of space for background noise to make itself known. A fantasy state dreamed up by children-should-be-seen-and-not-heard types as an excuse to punish children who took the ‘seen’ part of…
Verve 