Why Trigeminal Neuralgia Needs to Lose its Nickname

Billy Bones. Roribug. Little Bear. Flop-Eared Houndybeast. These are some of the nicknames I have for my daughter and grandchildren. Well, the last one belonged to our dog, who had many and varied nicknames. The kids don't have floppy ears. I'm sure we'll all be familiar with the concept of nicknames as affectionate (or otherwise!) … Continue reading Why Trigeminal Neuralgia Needs to Lose its Nickname

Getting a Slice of the Cake

Change. A single, soft-spoken syllable. Yet it's a powerful little creature, reaching into every corner of our lives. Sometimes it's an invitation - welcome and exciting. Sometimes it's a burden - disruptive and frightening. It's a bundle of contradictions: progress and retreat, secret and flamboyant, havoc and harmony. It can bounce into our lives with the … Continue reading Getting a Slice of the Cake

A New Kind of Normal

There is a storm brewing. I can feel it in my face - the way my eye burns, a vice tightens on my skull, and one hundred knives fresh off the whetstone slice at my gums. Just for starters. To everyone else in my family, the sky looks perfectly innocent. Perhaps the breeze has a … Continue reading A New Kind of Normal

Dear Healthy Person…

Dear Healthy Person, Congratulations. You won in the lucky jackpot of healthy genes. You are twenty of me. I think I lost my ticket. I am a twentieth of the old me. You can work, eight hours a day, five days a week. Maybe more. I used to work eight to ten hours a day. … Continue reading Dear Healthy Person…

Ten Ways to Understanding

A constant claim from many people with chronic pain conditions is that nobody can understand the pain unless they have experienced it themselves. On a superficial level this is obviously true, at least in that people who don't have chronic pain conditions, have not felt what it is like to have chronic pain. But I … Continue reading Ten Ways to Understanding

Sunhats and Selfhelp

On a hot, wind-still, summer evening, the park by the river is the perfect place to be. When you are only just two, this perfection poses a few dilemmas. Climbing and running and jumping, your very favourite things to do, make your shoes and sunhat fall off, and somehow turn the hat inside out. And … Continue reading Sunhats and Selfhelp

Pretty Lights

Public buildings, hotels, office buildings etc. in Australia, Brazil, Canada, China, Cyprus, England, Estonia, Ireland, Mexico, New Zealand, Qatar, Scotland, Taiwan, and the USA are lighting up for October 7th. To most people, the date means nothing. Yet it's a significant day to thousands of people around the globe. International Trigeminal Neuralgia Awareness Day.

How to Measure Pain

If only pain were as easy to measure as, say, volume. As height, or weight, or speed. Medical professionals try to quantify it. How bad is your pain on a 1 to 10 scale, with 10 being the worst pain you can imagine? Most health professionals I have come across also add 'childbirth counts as … Continue reading How to Measure Pain