A New Kind of Normal

There is a storm brewing. I can feel it in my face - the way my eye burns, a vice tightens on my skull, and one hundred knives fresh off the whetstone slice at my gums. Just for starters. To everyone else in my family, the sky looks perfectly innocent. Perhaps the breeze has a … Continue reading A New Kind of Normal

Dear Healthy Person…

Dear Healthy Person, Congratulations. You won in the lucky jackpot of healthy genes. You are twenty of me. I think I lost my ticket. I am a twentieth of the old me. You can work, eight hours a day, five days a week. Maybe more. I used to work eight to ten hours a day. … Continue reading Dear Healthy Person…

Ten Ways to Understanding

A constant claim from many people with chronic pain conditions is that nobody can understand the pain unless they have experienced it themselves. On a superficial level this is obviously true, at least in that people who don't have chronic pain conditions, have not felt what it is like to have chronic pain. But I … Continue reading Ten Ways to Understanding

Who Needs Matching Pairs?

Spring is flourishing here in New Zealand. The days are warm, the skies are blue, the birds have plenty to say for themselves and our feijoa trees are full with red promises of the fruit to come. Some days though, the weather likes to remind us that the season isn't all sunshine and glamour.  This … Continue reading Who Needs Matching Pairs?

Sunhats and Selfhelp

On a hot, wind-still, summer evening, the park by the river is the perfect place to be. When you are only just two, this perfection poses a few dilemmas. Climbing and running and jumping, your very favourite things to do, make your shoes and sunhat fall off, and somehow turn the hat inside out. And … Continue reading Sunhats and Selfhelp

Pretty Lights

Public buildings, hotels, office buildings etc. in Australia, Brazil, Canada, China, Cyprus, England, Estonia, Ireland, Mexico, New Zealand, Qatar, Scotland, Taiwan, and the USA are lighting up for October 7th. To most people, the date means nothing. Yet it's a significant day to thousands of people around the globe. International Trigeminal Neuralgia Awareness Day.