Triggers & Tips: How to Live Better with Trigeminal Neuralgia

I bought a chest-of-drawers recently, from a local op shop (thrift shop/charity shop). The wood was in pretty good nick - sturdy and solid. But it had a sad, tired paint job - chipped, peeling, and the wrong colour scheme for our bedroom. The other day I got busy in the garage with the sandpaper, … Continue reading Triggers & Tips: How to Live Better with Trigeminal Neuralgia

All the Little Extras: Quirks of Trigeminal Neuralgia

When I'm busy on a writing project, particularly if it's poetry or fiction, one of my favourite things to do is go to a local cafe and spend a couple of hours with a couple of cappucinos and my tablet. Most of my writing time is spent at home, in a quiet room overlooking the … Continue reading All the Little Extras: Quirks of Trigeminal Neuralgia

Rundown on a Rare Disease

Today was a lucky day. I found a four-leafed clover. Our garden was a farm paddock before they put a road and houses here, and if we don't keep the lawn under control it swiftly reverts to type and the clover runs rampant. It's the first time I found a four-leafed clover - despite hunting … Continue reading Rundown on a Rare Disease

Watching the Birdies

Our avian wildlife put on quite a show for us on Friday morning. We keep a bag of birdseed by the front door, and every morning pour handfuls of it on the fence outside our dining-room window, so we can watch the birds foraging while we eat breakfast. We always see a swarm of squabbling … Continue reading Watching the Birdies

Sounds of Silence: TN and Tinnitus

Silence is golden - or so it's said. I wouldn't know. I always thought silence was a utopian exaggeration. An absence of ambient sounds with plenty of space for background noise to make itself known. A fantasy state dreamed up by children-should-be-seen-and-not-heard types as an excuse to punish children who took the 'seen' part of … Continue reading Sounds of Silence: TN and Tinnitus

Why Trigeminal Neuralgia Needs to Lose its Nickname

Billy Bones. Roribug. Little Bear. Flop-Eared Houndybeast. These are some of the nicknames I have for my daughter and grandchildren. Well, the last one belonged to our dog, who had many and varied nicknames. The kids don't have floppy ears. I'm sure we'll all be familiar with the concept of nicknames as affectionate (or otherwise!) … Continue reading Why Trigeminal Neuralgia Needs to Lose its Nickname

Pretty Lights

Public buildings, hotels, office buildings etc. in Australia, Brazil, Canada, China, Cyprus, England, Estonia, Ireland, Mexico, New Zealand, Qatar, Scotland, Taiwan, and the USA are lighting up for October 7th. To most people, the date means nothing. Yet it's a significant day to thousands of people around the globe. International Trigeminal Neuralgia Awareness Day.

How to Measure Pain

If only pain were as easy to measure as, say, volume. As height, or weight, or speed. Medical professionals try to quantify it. How bad is your pain on a 1 to 10 scale, with 10 being the worst pain you can imagine? Most health professionals I have come across also add 'childbirth counts as … Continue reading How to Measure Pain