Tag: trigeminal neuralgia

Is your TN pain really so invisible?

Trigeminal Neuralgia is often described as an invisible illness. Or an invisible disability. Or a hidden disability. Take your pick – there are several phrases used to describe the same issue – conditions that are not immediately or visibly apparent to onlookers, even doctors. Trigeminal neuralgia is a condition caused by damage to the trigeminal…

Noisy Creatures

One of my favourite places to write, other than my art room on a sunny morning, is a local cafe – sitting at the quiet table in the corner, between a small forest of monsterras next to the window. If we go at the right time, it’s the perfect place. Wonderful art on the walls,…

How to get the best from your neurology consultation

Getting correctly diagnosed with trigeminal neuralgia is, for many people, a long, painful and frustrating business. Little training is given about it in medical school – my GP told me that he had had perhaps ten minutes teaching on TN in a lecture on neurological conditions back in his first year of training. This isn’t…

Trigeminal Neuralgia: Myths and Misunderstandings

7th October is an important day for people with Trigeminal Neuralgia. It is the international awareness day. People will be wearing teal t-shirts, getting buildings to glam up with teal lights, sharing facebook pics of teal ribbons and TN facts. This year I’ve decided to unpick some of the myths that exist about the condition.…

Rundown on a Rare Disease

Today was a lucky day. I found a four-leafed clover. Our garden was a farm paddock before they put a road and houses here, and if we don’t keep the lawn under control it swiftly reverts to type and the clover runs rampant. It’s the first time I found a four-leafed clover – despite hunting…

Watching the Birdies

Our avian wildlife put on quite a show for us on Friday morning. We keep a bag of birdseed by the front door, and every morning pour handfuls of it on the fence outside our dining-room window, so we can watch the birds foraging while we eat breakfast. We always see a swarm of squabbling…

Sounds of Silence: TN and Tinnitus

Silence is golden – or so it’s said. I wouldn’t know. I always thought silence was a utopian exaggeration. An absence of ambient sounds with plenty of space for background noise to make itself known. A fantasy state dreamed up by children-should-be-seen-and-not-heard types as an excuse to punish children who took the ‘seen’ part of…